Mr Robin Swann, the North Antrim Ulster Unionist Party Assemblyman and member of the Stormont Public Accounts Committee, has challenged the DUP/Sinn Fein-run power sharing Executive “to get its act in top gear and provide the much-needed support for those suffering from Huntington’s Disease”.
Assemblyman Swann, the UUP Chief Whip and also Chair of the Stormont All-Party Committee on Congenital Heart Conditions, threw down the gauntlet to the Executive as he revealed there were some 150 sufferers of Huntington’s Disease in Northern Ireland.
Mr Swann said: “Having chatted to both sufferers and their carers, I fully support any call for additional support and access to treatment for those 150 sufferers of Huntington’s Disease throughout the Province.
“While there are other diseases, illnesses and challenges which are just as serious, there is the real danger that conditions such as Huntington’s Disease could slip beneath the support radar because there only about 150 cases in Northern Ireland.
“These sufferers are just as entitled to additional support and access to treatment as any other condition. I do not want the Stormont Executive, and especially the Health Minister and her department, to allow Huntington’s Disease to become the forgotten condition and these 150 sufferers to become mere statistics.
“They are all human beings and they deserve equal treatment,” said Assemblyman Swann.